 "Netflix's Heeramandi actor Shekhar Suman breaks down talking about his first son Aayush's illness & death: 'We were dying alongside him'")
Veteran actor Shekhar Suman, who has impressed everyone with his portrayal in Sanjay Leela Bhansali’s Heeramandi: The Diamond Bazaar, spoke about the unfortunate demise of his and wife Alka Suman’s elder son Aayush, who passed away at the age of 11 due to a rare disease called Endomyocardial fibrosis (EMF).
“EMF is a disease so rare that it affects only one in billions. As far as I know, there might be only three or four cases of it in India. Unfortunately, there is no known cure; the only treatment option is a heart transplant,” Shekhar said while talking to ABP News.
“You can imagine the depth of our despair… We spared no expense in seeking the best medical care available worldwide. We sought solace in spirituality, visiting numerous places of worship, embracing Buddhism, and praying day and night. But there are miracles in life, things that are destined to happen, happen. Despite this, by some divine intervention, Ayush defied the odds and lived not just for eight months, but for four years. However, the looming reality of his eventual fate weighed heavily on us. I would spend sleepless nights gazing at his face, knowing that one day we would have to bid him farewell. Our sense of helplessness was overwhelming, our hearts shattered into pieces. We felt as though we were dying alongside him,” he added.
The actor recalled the day when his son passed away and said, “The day arrived when we had to admit him to the hospital. After receiving the doctor’s verdict, I cradled him in my arms. He was lifeless, he had left us. I kept lying with him, with his body, all night, all day, and cried a lot. Alka also cried a lot, but she eventually regained her composure. What greater anguish, sorrow, and agony is there for parents than to bid farewell to their child, to offer them to the flames, and to encircle the funeral pyre? We hoped time would ease the pain as it heals wounds, but instead, the pain intensified.”
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